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Information on 48XXXY Conference
May is National X & Y Chromosome
Awareness Month!
Press Releases:
The Focus Foundation
Senator Brownback
Forgotten Children Questionnaire
Public Service Announcement
download a brochure about
The Focus Foundation
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OUR MISSION
The Focus Foundation is dedicated to helping children and families affected by X & Y Variations, Dyslexia, and/or Developmental Dyspraxia.
The Focus Foundation believes that through increased awareness, early identification and syndrome-specific treatment, children with these
conditions can reach their full potential. |
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Board of Directors
. . . and other members of The Focus Foundation team
Stephanie Donahue, J.D., Board President and Treasurer
Stephanie Donahue brings to The Focus Foundation a wealth of experience in family law. The co-founder of The Donahue Law Firm, located in Annapolis, Maryland, Ms. Donahue earned her undergraduate degree at the Ohio State University and is a 1986 graduate of the George Mason University School of Law. A skilled negotiator and courtroom litigator, she is a member of the Pennsylvania and Maryland bar associations. Ms. Donahue is a strong advocate for the needs of families in crisis. The Focus Foundation's board and the children and families it serves benefit from Ms. Donahue's legal expertise as well as her personal experience as a mother of four.
Francine Mitchell, MS, RPT, Board Vice President
Trained in pediatrics, Francine Mitchell is a physical therapist with more than 25
years of service on the national and local boards of the American Physical
Therapy Association (APTA). She has worked in a variety of venues including
hospitals, school settings and private homes providing therapies to children
with both rare and common neurogenetic disorders. Ms. Mitchell brings to the
Foundation years of experience with the legislative aspect of improving care
for developmental disorders. Her diverse experience in the medical and
public sector are valuable to the Foundation's goal of increasing awareness
about the disorders it serves.
Linda Loftus, Ed.S, Board Secretary
As the program coordinator for the second largest infants and toddler early
intervention program in Maryland, Linda Loftus has more than 25 years
of experience working with young children who have complex developmental
disorders. She is familiar with the funding aspects of infants and toddler
programs throughout the country and brings knowledge about the variety of
services provided to young children with developmental disabilities.
Carole Samango-Sprouse, Ed.D., Executive Director and Chief Science Officer
Dr. Carole Samango-Sprouse has been working with very young disabled children since
1982. She received her doctorate in 1987 from The George Washington University,
where she specialized in the neurodevelopmental assessment
of children with complex medical conditions. Dr. Samango-Sprouse is trained in neuromotor and
neurocognitive development, neurobehavioral skills and oral motor assessment for
children with an emphasis on young children with genetic disorders. She is
experienced in neurodevelopmental training (NDT), assessment of pre-term infant
behavior (APIB) and the Brazelton Neonatal Assessment Scale (BNABS). Dr.
Samango-Sprouse studied neurobehavioral assessment at the Children's Hospital of
Boston with Dr. Heidilaise Als, a developmental psychologist and renown Harvard University scholar.
Dr. Samango-Sprouse has published more than 60 articles about the
neurocognitive capabilities of atypical children. She studies the relationship
between the brain and behavior and its impact on school performance in children
with sex chromosome variations (SCV), autism spectrum disorder (ASD),
neurogenetic disorders including neurofibromatosis-type1 (NF-1), and developmental
dyspraxia, among other conditions.
Presently, Dr. Samango-Sprouse is the director of the Neurodevelopmental
Diagnostic Center for Young Children, located near Annapolis, Maryland. In addition, she
is an associate clinical professor of pediatrics at The George Washington University
and is on staff at Children's National Medical Center in Washington,
D.C. Dr. Samango-Sprouse evaluates patients from all over the world who have
complex diseases such as autism spectrum disorder and sex chromosome variations
in order to develop comprehensive and intensive intervention programs that are
syndrome-specific. These programs recognize the complex interaction and intimate
connection between the brain, cognition, behavior, learning and medical
diagnosis.
Dr. Samango-Sprouse believes that a family-centered approach is essential to optimizing a child's intellectual growth and developing appropriate intervention strategies in the home, school
and community. "Parents must be empowered with information about their child's medical condition, and how that condition will impact their child's learning and intellectual performance," she says. "When parents are armed with the right skills, they can advocate for a syndrome-specific educational program in order to optimize their child's educational program and development."
As an educator, Dr. Samango-Sprouse has trained pediatric residents at
Children's National Medical Center since 1982. Her instruction focuses on the
behavioral phenotypes and neurodevelopmental performance of children with
various genetic disorders. Relatedly, Dr. Samango-Sprouse conducts workshops
nationwide for educational and ancillary health professionals about optimizing
children's development by recognizing the relationship between behavior, the
brain and performance.
Throughout her career, Dr. Samango-Sprouse has served on numerous advocacy
foundations and boards for health and professional organizations. She presently
serves on the steering committee of the Autism Genetic Resource Exchange (AGRE),
an organization that fosters neurobiological research about children with
autism. AGRE is the largest genetic repository in the world of DNA material from
families with autistic children.
Teresa Sadeghin, MS Ed., Program Manager
Teresa Sadeghin has been working with young children since 1970, when she became
an educator in Prince George's County, Maryland. After receiving her masters in
curriculum development from Bowie State University, Mrs. Sadeghin served on the
county's science curriculum committee for 17 years, wrote curriculum for the
Science Math and Technology Integrated Matrix Package to implement and integrate
performance-based science tasks, and wrote Internet and applied technology
extensions for those tasks. Mrs. Sadeghin was a team writer for the
Invention-Innovation-Inquiry Project, which was funded by the National Science
Foundation through the International Technology Educators Association. She is
certified in Facilitative Leadership Training and Event Planning.
Following her retirement from education in 2000, Mrs. Sadeghin continued working
with young people as the Newspapers in Education director at the Sentinel
Newspapers. She created, compiled, edited and provided graphics for four weekly
newspaper pages targeted at students in order to promote literacy.
In addition to the administrative work she does for The Focus Foundation, Mrs. Sadeghin assists Dr. Samango-Sprouse at the Neurodevelopmental Diagnostic Center for Young
Children, for which she coordinates studies, administers informed consents, serves as a liaison to patients and parents, and organizes specialty programs. Mrs. Sadeghin works closely with families to implement Dr. Samango-Sprouse's targeted treatments.
Rebecca Rosenson, B.S., Research Assistant
Rebecca Rosenson is a graduate of East Carolina University. During her senior year she studied abroad in India, where she assisted the non-governmental organization Tong-Len in providing humanitarian aid. While working as a marketing intern with Boys & Girls Clubs of Pitt County, N.C., Ms. Rosenson realized how much she enjoys working with children. She joined The Focus Foundation in August 2009.
Kathryn Haskell, B.S., R.N., Registered Nurse
Kathryn Haskell has more than 30 years of nursing experience with children who
have complex developmental disabilities. She has worked in hospital, public
school, public health and home-based settings and has developed numerous
protocols, such as for childhood immunizations and medical procedures within the
public school setting. Her expertise at managing detailed medical projects with
large cohorts of disabled children is an essential component to the Foundation
fulfilling its mission statement and increasing national awareness of dyslexia,
developmental dyspraxia and sex chromosome disorders.
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