why we focus
x &
y variations
developmental dyspraxia
dyslexia
related conditions
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the atypical learner
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Information on 48XXXY Conference
May is National X & Y Chromosome
Awareness Month!
Press Releases:
The Focus Foundation
Senator Brownback
Forgotten Children Questionnaire
Public Service Announcement
download a brochure about
The Focus Foundation
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OUR MISSION
The Focus Foundation is dedicated to helping children and families affected by X & Y Variations, Dyslexia, and/or Developmental Dyspraxia.
The Focus Foundation believes that through increased awareness, early identification and syndrome-specific treatment, children with these
conditions can reach their full potential. |
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Goals & Programs
Among our many efforts, The Focus Foundation is working to:
- Increase awareness of X & Y Variations, Developmental Dyspraxia and Dyslexia
- Improve the early identification, treatment and recovery of the children who have these
conditions
- Identify innovative, early treatments
- Advance neurobiological research
- Support research and educational projects that will lead to faster and earlier recovery for
individuals with X & Y Variations, Developmental Dyspraxia and Dyslexia
- Promote improvements for affected children in developmental progression, education,
social-emotional skills, language-based learning function, nonverbal performance and eventual workforce employment
- Identify and treat the children who have at least one of the disorders but are
not yet diagnosed
- Develop training and early identification programs to educate the professional community,
which includes, but is not limited to, physicians, nurses, psychologists, child care providers, teachers, special educators and physical, occupational
and speech-language therapists
- Create programs for improving gross motor, pre-reading and ocular motor skills and
development specific to these disorders
- Improve ocular coordination as related to reading dysfunction for these disorders by
partnering with developmental optometrists
- Develop a systematic approach for the treatment of infants who have atypical muscle tonus
from X & Y Variations or Developmental Dyspraxia
- Establish the formulation of a screening tool for the identification of children at high
risk for X & Y Variations in infancy, preschool and at school-age so pediatricians can effectively screen at-risk children
- Launch a clinical trial in hormone replacement for infants with XXY/Klinefelter Syndrome
and its impact on brain development, neurodevelopmental progression and behavior
- Establish standards of care for the treatment of X & Y Variations
- Enhance endurance and strength for boys and girls with X & Y Variations by partnering with
clinicians and researchers in physical therapy and motor development
- Increasing national awareness by publishing articles in both scientific and lay journals
concerning X & Y Variations and Dyspraxia
Note: 47, XXY is also known as Klinefelter Syndrome; 47, XYY is also known as Jacobs Syndrome.
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The photographs used on this website are for illustration purposes only.
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