Thanks to everyone who submitted a proclamation request to their governor and/or mayor and has helped to declare May as X & Y Chromosomal
Variation Awareness Month!"
If you or someone you know is using Carnitine supplements, this Joint Statement will be of interest to you.
We're focused on finding
The Forgotten Children
The Focus Foundation is the first and only research-based agency
exclusively dedicated to identifying and helping children who have X & Y Variations
(also called X & Y Chromosomal Variations or Sex Chromosome Disorders; within the disorder are many sub-categories, which are identified
by names including Klinefelter Syndrome, 49 XXXXY, Tetrasomy X, 49 XXXXXX, Pentasomy X, 48 XXY and 47 XXY.),
Dyslexia and/or Developmental Dyspraxia,
conditions that lead to language-based disabilities, motor planning deficits, reading dysfunction, and attention and behavioral disorders.
All physicians, ancillary health care providers
and special educators are taught that genetic abnormalities can impact a child's development. Unfortunately, because most '
practitioners often receive insufficient information about sex chromosome disorders, they don't even consider testing for X &
Y Variations when caring for a child who presents with developmental concerns.
We want health care providers, educators and parents to know:
1 in 500 children have X & Y Variations that cause complex learning disabilities.
20 babies born each day have an X & Y Chromosomal Variation, and only 5 will be diagnosed in their lifetime.
Developmental Dyspraxia is often mistaken as being "only a minor speech delay" when, in fact, multiple developmental domains
are affected and require targeted treatment.
Symptoms of Dyslexia often present in preschool years and early identification and treatment is highly effective.
10 percent of children with X & Y Variations are identified prior to birth and they usually develop Dyspraxia and Dyslexia. The
knowledge gained from caring for these infants and toddlers benefits all children who have reading, speech and motor planning dysfunction.
With the proper diagnosis and intervention, children who have these neurogenetic disorders can be transformed from vulnerable to powerful,
from school failure to academic success, from disabled to able.
Early Identification + Targeted Treatment = Recovery
The Focus Foundation: Because every child
deserves the chance to succeed
The photographs used on this website are for illustration purposes only.
OUR MISSION The Focus Foundation is dedicated to helping children and families affected by X & Y Variations, Dyslexia, and/or Developmental Dyspraxia.
The Focus Foundation believes that through increased awareness, early identification and syndrome-specific treatment, children with these
conditions can reach their full potential.